Showing posts with label Alzheimer. Show all posts
Showing posts with label Alzheimer. Show all posts

Saturday, 13 January 2024

The Tale of the Peanut and the Long COVID epilogue


Hiya!

I'm a terrible blogger.  

I have found Instagram to be an easier outlet for my creative bursts, such that they are. So if you miss my adorably trying and annoying online presence, please, feel free to follow my Instagram account. It's public for now and will remain that way until the weirdos (read: incels, anti-vaxxers and freeDUM convoy creeps) make it an uncomfortable space and then I'll let my nasty alter ego take over and the internets will be like over-stimulated apes and chimpanzees screeching and tossing handfuls of shit all over each other. (Yes I know it already is like that, but this corner will be amalgamated into that too).

If you cared enough to read the whole previous COVID post and are concerned, I may have neglected to mention that I was, at the time, under an enormous amount of stress. Without getting into the boring and personal bits, a huge change in my life came along and we got through it okay but the journey was one hell of a challenge. 

I'm not longer living in the big city and have left to live in in the boondocks of Canada.

Silver Birches - Tom Thomson

I'm practically living in a Group of 7 painting and it's been quiet, sometimes too quiet, but peaceful.

I can say, with some certainty, that the Long COVID symptoms were also symptoms of extreme duress and the two simply fed off each other and turned me into a hacking, coughy, fatigued mess of a person. 

My stomach aliments, now that we've mostly fully investigated them, likely pre-date COVID and were noted by another doctor/dentist, but largely dismissed because I wasn't familiar with any of the symptoms of acid-re-flux. I did a barium swallow-test and it seems that I do suffer from it but didn't understand that was what was happening and it was obviously made worse with the stress.

Barium swallows are yucky. Normally I have a strong constitution when it comes to conventionally 'gross' food items, but this one was a little difficult on an empty stomach. Imagine drinking chalk. That's pretty much it. If it came in another flavour, it would be like drinking coloured chalk. Needless to say, I'm in no rush to have another one.

My oesophagus is okay tho. No damage. 

My fatigue comes and goes, but with the major stress I was experiencing now gone, the fatigue isn't as bad anymore, but still concerning because I shouldn't be this tired all the time. 

The brain-fog is the most discerning part of the equation. I still have trouble putting my thoughts into words and will stand there trying to piece together steps of a task that I've done many times before. The confusion bothers me because it puts me one step closer to that unknowable monster that is Alzheimer's. I recently read a book called "Forgetting" by Dr. Scott A. Small, which put my mind a little at ease. It broke down the mechanisms of memory and made it more like an engine repair manual. If you have an issue, you trace it back to the source. They have ways of doing this, they have ways to understand this. They are always working on a solution. By the time things start to really show, maybe there will be a magical pill. Until then, I shall continue to prattle on, take bad photos and be a menace to my corner of the internet.

Writing is a blessing to me because, unless I'm messaging someone, I can take the time I need to remember the words I need to describe what I'm feeling, thinking, imagining. But it, like everything else, is becoming a little harder for me to do. When I was younger, words used to pour from me with ease. But my internal dialogue never had words in it. It's images, feelings, abstract ideas that don't necessarily have words at the ready anymore. My descriptive audio is failing. 

However, it's easier to sit and try to remember, say, the same of a tool, like a set of tongs, instead of standing there in the kitchen heat, staring right at them, and trying to ask my husband to pass them to me before something burns. "Hey, can you pass me the things that pinch?" Yes. I've been reduced to describing the action of the item I need. Our conversations are not unlike this on a daily basis: 

Me: "Can you give me the thing that has ink in it? You write with it. That thing." Pointing desperately

Him: "The pen?" 

Me: "Yeah, the write-y, stylus thingy!"

Him: "Pen."

Me: (Frustrated but seeing the humour in it all) "WRITEY STYLUSY THINGY."

Hopefully my memory and physical coordination organ stays in good repair and I can continue being as non-senile as possible for many years to come. If not, I'll look back on this babble and likely wonder who the eff this weirdo is that wrote all this nonsense.

Tuesday, 7 May 2019

Ok. Let's try this again...

This is Precious Christine, my Honda Shadow Spirit 750
So... I finally started Instagram-ing and have discovered the limitations of all the social media platforms. I like to write. I tend to ramble and I have no focus in life.

I've started using Facebook like a diary and while it's been fun, it's limiting. I can't, say, post a link to a video and a photo at the same time without it looking wonky. And then Instagram doesn't do links very well.

Plus, Instagram is like Twitter, but with more followers. And then someone I really like and admire, (aside: and have a giant crush on!!), starting following me and commented on a few posts. I had a fan girl moment (READ: Pissing my pants!) and was like... Be cool, be cool. Don't scare him away FFS! And if he is reading this... well... Um...

*Panics... Runs away... Hides. Ugly crying like Troy in Community when he met Levar Burton, sitting in the washroom.*



K... so let's try this again. Here are my collected thoughts, rantings and ramblings.

The point?

I dunno. Maybe my life experiences, few and far in between as they are, might amuse someone, might provide a valuable lesson, might help someone know they're not alone in the weirdness of life? Take what you want from this. Try to keep up, I have to follow a guy on a 103 Street Glide who seems to forget I've only got a 750 Honda Shadow. FYI... I keep up with him just fine, thanks.

On a slightly sadder note: I have no kids. I have this one beloved nephew. I feel like I need to leave something behind about his nutty auntie that he can look back on if he wishes. Also for my extended family, we are separated by an ocean and culture, but we found each other and there's things that need to be shared. 

And my mother has Alzheimer's disease. It tends to run down the female side of the family so you can understand my desire to try to document pieces of me before they're whisked away.

What's going into this blog:

So I've started posting songs that I listen to from Facebook, Throwback Thursday posts on Instagram among other things.

I think this will be my blog and collected social media spot. I'm going to back date my posts to match the dates they went up on social media because I'm weird that way.

Also, this is me, and I've recently gotten into Talk Talk. For those who known me, you remember when I was in high school and EVERYTHING I did was Duran Duran related? Yeah... you know what's coming. But, because I'm allegedly an adult now, I'll try my best to keep that to a minimum.  (READ: F you all. I'll make every post about Mark Hollis, Paul Webb and Lee Harris if I can, dammit.)

First random fact about me: I am in a later stage of life and it feels like puberty all over again, right down to the crushing after unattainable celebrities. (Read: I think I'm a cougar because those photos of Talk Talk and Duran Duran when they're like half my current age (and younger)... daaaaamn!

Fun fact 2: My mom developed a GIANT crush on Patrick Stewart. Seems mom and me really like British men.